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Lawyers wrestle with brave new world of genetic tests and rights

Thursday, July 23, 2015 @ 8:00 PM | By Cristin Schmitz

Doctors at Toronto’s Hospital for Sick Children know 12-year-old Ann has one of two life-threatening diseases, but they aren’t sure which one.

The uncertainty could be fatal because the two disorders demand very different treatments: either drugs, or heart surgery to forestall sudden death.

Genetic testing is recommended for Ann (not her real name) and for her father, who is asymptomatic but might share her condition. But he has declined testing for both of them. Not having life insurance or long-term disability insurance, he worries he...